* VLOG * Aiden's Head Surgery: Day 2 - Pre-Op Appointments
9:26 PM Aiden , Aiden's Journey , Apert Syndrome , Dr. Fearon , Ronald McDonald House , Surgery , The Tough StuffToday was a very busy day - one appointment after another from 9:30 am to 5:00 pm. We were able to meet up with April, her mom and her sweet new baby girl Greta for a quick lunch. Holding that little peanut and seeing how cute Aiden was with her makes me even more excited for Hudson to get here in August!
Aiden is asleep next to me as I type this. I keep running my hand over his head - feeling the shape of it under my palm. It's hard for me to wrap my mind around the fact that in less than 12 hours that will all feel different forever. There are some things that we are looking forward to having "fixed" - like the fact that his left brow bone has been lower than his right since the last craniotomy and all the lumps across his forehead that need to be "smoothed" out.
But those bumps, the uneven brow, the big sparkly eyes...that is my Aiden. I'm apprehensive about changing my boys features to say the least.
All in all, I'm trying to remain positive. We know this surgery is necessary - critical, in fact - to allowing his brain the room to grow unrestricted and keeping him developmentally on track. Dr. Fearon says he is one of the smartest kiddos he sees and while we attribute that to having proper medical treatment from day 1, he gave us a little pat on the back by saying that some of his research points to the home-environment playing a key role in the cognitive development of kids with Apert Syndrome.
So with that, I will just breathe. And I will trust in the fact that we are doing and will continue to do everything in our power to keep him strong and healthy. The cuteness, well, that's just part of who he is and nothing can take that away!
Here is a video from earlier this evening - featuring the star of the show this week...AIDEN!!!
PS - We found out today that his sleep study was completely normal...no apneas!!! Thanks again for everyone's continued prayers!