tag:blogger.com,1999:blog-6209411204914238553.post591463345605655865..comments2023-06-19T10:24:06.335-05:00Comments on More Skees Please: when your world falls apartTarynhttp://www.blogger.com/profile/17301740249699821366noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-6209411204914238553.post-59085569042071392122011-12-11T21:58:05.370-06:002011-12-11T21:58:05.370-06:00Taryn, your story and your candor inspire me. You...Taryn, your story and your candor inspire me. You are a fantastic mother and a great writer. Keep up the good work! Hope to see you at another Austin blogger event soon.Kristinhttps://www.blogger.com/profile/13598792501741861659noreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-4432812507480619832009-11-11T21:32:52.104-06:002009-11-11T21:32:52.104-06:00Taryn,
Aiden will continue to amaze you and he wil...Taryn,<br />Aiden will continue to amaze you and he will be speaking the same way as Ethan. I have lived it through Randy and it is the best feeling ever. I can totally relate to your feelings and you are an incredible mommy. Our kids are lucky to have us!!<br /><br />ElsieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-37062202860604680012009-11-06T15:05:58.016-06:002009-11-06T15:05:58.016-06:00Taryn, thank you for sharing your story in such an...Taryn, thank you for sharing your story in such an open and honest way. People who do not live with a child with a disability often cannot imagine how difficult it can be. I admire you for sharing your thoughts with us and for carrying on each day with great purpose and love.MoDLinhttps://www.blogger.com/profile/10962353800803717089noreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-33090512876936833172009-11-03T17:19:44.485-06:002009-11-03T17:19:44.485-06:00Taryn, I keep coming back to this entry trying to...Taryn, I keep coming back to this entry trying to find the right words to post a comment. I still haven't. But I wanted you to know that this post made me think back to growing up together and sharing our hopes for the future. We started out in a very similar place having grown up on the same street and even though Aiden and Brian's disabilities are so very different, I often marvel in the fact that we have ended up in a similar situation all these years later and miles apart. This post made me ache for you and for Aiden. It made me ache for me and for Brian. But, coming back to it today it made me so happy for Aiden and Brian to have you and me to help them through this world. And it made me happy for me because I have you to look to when I feel like my world is falling apart. Many have said it, but I will repeat it. You are an inspiration. I am proud to be your friend.Mariahttps://www.blogger.com/profile/08636797404563153761noreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-34502248194850734032009-11-01T23:47:03.514-06:002009-11-01T23:47:03.514-06:00You are so brave. Thank you so much for sharing th...You are so brave. Thank you so much for sharing this. We have to pass through those stages and fighting them just prolongs the whole process. You are so very inspiring. I am amazed that you were holding all this in while doing so much for others. I'll be praying for you and ask that you would keep me in your prayers as well.Mariehttps://www.blogger.com/profile/16158883265713752481noreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-72045339599847586012009-11-01T15:45:08.710-06:002009-11-01T15:45:08.710-06:00Taryn,
I loved this blog entry! I just posted an ...Taryn,<br /><br />I loved this blog entry! I just posted an interesting article I found on another child's blog that deals with the impact the disability of a child has on parents. I thought you might like to read it.... http://carlyandjay.wordpress.com/2009/11/01/dealing-with-disability/<br /><br />CarlyCarlynoreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-80881815857490163342009-11-01T14:42:41.088-06:002009-11-01T14:42:41.088-06:00Taryn,
You made me shed a tear (or two) at work !!...Taryn,<br />You made me shed a tear (or two) at work !! You are an incredible, wife, mum and 'still' beautiful girl about to get married!<br /><br />You have been through so much in the last 2 years, I can relate to so much of it, except getting pregnant when my first born was 3 months-that is pretty impressive!<br /><br />I also go through the pain/guilt sensation many many times - not so much daily now like I used to, but at least once a week I experience my thoughts beginning to slip down that dark slippery slope of 'imagine what it would be like'. <br /><br />The thing that keeps me from dwelling in that place for too long, is that I can see that my thought patterns or comparisons, only work to make me sad, envious or longing for something that is just not meant to be. Somehow, something in me pulls me away from dwelling their for more than a second or two. Maybe that is the grace of God, or some other force! I like to think we all have angels that watch over us.<br /><br />I then am struck by thoughts of this amazing little boy we have, and the people we have come into contact with because of him, and the unfailing smile and unbelievable strength he possesses. <br /><br />Somehow again, my thoughts then do a complete 360 and I can't believe our luck and our blessings for having been given him. <br /><br />I know you've probably read this many times before, as have I, but I find it so true, I thought it worth sharing with you ;<br /><br />I am often asked to describe the experience of raising a child with disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... <br /><br />When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. <br /><br />After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." <br /><br />"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." <br /><br />But there's been a change in the flight plan. They've landed in Holland and there you must stay. <br /><br />The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. <br /><br />So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. <br /><br />It’s just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. <br /><br />But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." <br /><br />And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. <br /><br />But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland. <br /><br />* * *<br />Taryn, you and your family are inspirational. You make me push, strive and hope for more everytime I check in on your blog. As others have said, it's ok to be sad, angry, depressed. Thank you so much for sharing your experiences.<br /><br />Lots of love<br />Maria (Ira's mum)Maria - Ira's mumhttps://www.blogger.com/profile/16854281965392579103noreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-77595367991076229412009-11-01T08:51:14.876-06:002009-11-01T08:51:14.876-06:00You are brave, amazing and inspirational, and you ...You are brave, amazing and inspirational, and you must also allow yourself to be human. Beautiful post.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-71928847909285073392009-10-31T14:17:59.583-05:002009-10-31T14:17:59.583-05:00Taryn and the Skees Family your are remarkable hum...Taryn and the Skees Family your are remarkable human beings for what you deal with day in and day out. We all wish we had that strength. Yes but sometimes it is to hard to handle and we lose it all but god doesn't look at us any different. Keep your head up high and others will learn to do the same. Love always your Chicago familyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-40443943249446735662009-10-30T09:12:55.388-05:002009-10-30T09:12:55.388-05:00It is so powerful and brave to bare your soul to o...It is so powerful and brave to bare your soul to others.Motherhood is the most rewarding hardest job there is.Loved this post Taryn!Anonymoushttps://www.blogger.com/profile/00237558265987895103noreply@blogger.comtag:blogger.com,1999:blog-6209411204914238553.post-4835457844655854342009-10-30T06:51:07.066-05:002009-10-30T06:51:07.066-05:00Taryn, you are amazing. As a Mom, a wife, a frien...Taryn, you are amazing. As a Mom, a wife, a friend...my goodness you are such an inspiration to me. Your family is beautiful, you're beautiful. And, yes you looked amazing on your wedding day :)Audreyhttps://www.blogger.com/profile/14412118363197048210noreply@blogger.com