I packed the bag with Ethan's towel, extra clothes and snacks and we loaded the kids into the car. Ricky and I opted for Subway and brought a cooler with softdrinks. By the time we headed out, the perfectly sunny sky started to turn gray. We checked the local weather-by-phone and were disappointed to hear that there was a 60% chance of storms in the "early afternoon". I looked at the clock. 11:45. Great.
We hurried to Subway and decided to eat our food in the car so it would give Ethan more time to play at the park before any rain. We arrived downtown, found a great parking spot and started to unload. Strollers, check. Little boy ready to play in the water, check. Towel and dry clothes for said little boy...nowhere to be found. It remained by the door at home. Boo.
So plan B or should I say, now, plan C. Let him play in the water and use the blanket we brought (for the picnic we were going to have) to dry him off. Got the kids in their strollers and headed to the water play area. Just as we got Ethan out of the stroller and interested in the spouting water fountain - rain. It wouldn't have been a big deal, but poor little Aiden in his stroller...Ricky went to get the car. So now that Ethan was soaked and we didn't have time to get him dried off, we had to get back in the car and head home.
Not quite the family day we had in mind. However, it was still a good time and got us out of the house for a few hours. Plus, we got a few cute pics, which always makes it worth it!
And Aiden has started to smile a knowing smile. The kind that when I get in front of him as he's staring at the blinking lights of his toy, he seems to notice me and thinks "hey, that's that lady I kind of like". My heart melts.
I'm getting ready to leave Aiden for a few nights (the first time I will be away from him for more than one night) and I cannot help but already feel upset. I won't nuzzle him one, two or (sometimes on those particularly annoying nights) three times at night. Instead I will awake to a plastic pump - which I wouldn't count as very enjoyable at 4am. I'll try to enjoy my "time away from the baby", but I know that I will more than likely miss him even after my newfound freedom allows me to have a few margaritas with the fam.
And I must say - I'm continuing to learn that God works in mysterious ways. I've been fortunate enough to be connected with some wonderful people in the past few days that have both inspired me and provoked me to think of my life differently.
Okay - so I've blogged twice in one day. I'm officially addicted. Stay tuned, apparantly I've got a lot to say.
A few things about me:
- I just celebrated my 3 year anniversary with my husband.
- We have 2 beautiful boys - ages 14 months and 3 months.
- We have a cat - Baxter - also a male.
- This means I'm the only estrogen in a house full of testosterone...(I actually just finished the book House of Testosterone - a must read for moms of all boys)
So in between changing diapers (two separate bottoms mind you), changing my shirt after being spit-up on...again, consoling a toddler who just bumped his head on the coffee table and attempting to pee every now and then, I'm going to take on this new-age blogging thing. If I can no longer have adult conversations outside of the house all day, then clearing my head to a computer screen will have to suffice.
Take it easy on me - I'm new at this.
We're back from Dallas and I'm happy to report that we are thoroughly pleased with our appointment with Dr. Fearon. He brought us into his office and immediately asked to hold Aiden while he examined him. This was a nice change from all the other doctors who checked him out while laying on the scratchy white paper on the examining table. It made me feel as if he was a genuine and gentle person, not just a doctor who was giving him a once over.
We spoke to him for almost 2 hours during which he told us the following information - both general and about Aiden:
It was a lot to digest, but the important thing is that when we left his office, we knew in our gut that this is where Aiden needed to be. The next steps will be to send Dr. Fearon pictures of Aiden and his head circumference in 3 months so that he can evaluate his head shape. We will then set a date for his first hand/foot surgeries.
Aiden continues to do well developmentally and also with his physical therapy. He is so far hitting all milestones for his age (even being 5.5 weeks premature) which is great news. We pray that he keeps progressing!
Aiden - or "Dee Dee" as I call him - is doing good. I still like to hug on him lots. He makes me smile all the time. Especially when I am in another room and I can hear him. I point and say "Dee Dee". I love my little brother. I can't wait until he is big like me so we can play together more.
I have lots of teeth now. I've got 4 molars, and 4 teeth on the top and bottom in the front. I LOVE to brush my teeth. Really, I just like to suck the yummy tasting gel of the toothbrush, but mommy says she'll take that if I'll do it. We sing the ABC's while she tries to scrub my teeth. I think I might go to the Dentist soon.
Mom and dad say I am a ball of energy - and Nana says I'm such a busy boy. I love exploring everything - and especially like to find all the things that mommy and daddy don't want me to have (like the expensive remote control and the phones...I've managed to set off the house alarm more than once! Sorry ADT.)
I am a very sweet boy, but I've recently learned how to have a meltdown. If I don't get my way I throw myself on the floor and flail my arms and legs while screaming. I glance up periodically to see mommy or daddy's reaction, and most of the time they look very mad (although one time I caught them laughing at me!) Hopefully I'll find a better way to negotiate getting what I want soon or else I think mom might go crazy!
I got to stay with Grandma and PawPaw when mommy and daddy took Dee Dee to Dallas, TX. I love playing with my cousins Kevin, Makenzie and Presley. We swing on the swingset and sometimes PawPaw takes us on tractor rides.I went to Kings Island with mommy, Aunt Lauren, Uncle Jeff and my cousins Lilly, Andy and Ben. For some reason, I didn't like any of the rides in Kiddie Land. I was too small for most of them, but even the ones I was big enough for I didn't want to ride. Maybe when I'm 2 I won't be as scared. It sure looked like Andy and Lilly had a good time!
Say some prayers for Dee Dee will you? Love, Ethan
I crossed my fingers that he would be a good little patient and allow us to get this very important test completed as Ricky and I both wanted to know the results badly.
A nurse scrubbed his forehead and earlobes with a gritty lotion and applied small metal electrodes in two places on his head and on each earlobe. Two small tubes were then stuck into his ears and a "pre-test" was done to give them an idea if Aiden had any hearing at all. He passed the pre-test - a good sign.
Then, I fed him and the ABR was started...he slept like a baby in my arms the entire time! The audiologist couldn't believe how good he was and she was able to fly through the test - we were finished in 25 minutes! As the test was being done, the results were showing up almost immediately on her computer. Aiden's results were, according to the audiologist, "textbook results". Aiden not only has 0% hearing loss, he also has average size ear canals which is a good thing with a child with Apert Syndrome. We couldn't be more pleased!